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Healthy Relationships, Sexuality and Disability

Resource Guide 2011

Prepared by a partnership between the

Massachusetts Department of Public Health (MDPH) and the

Massachusetts Department of Developmental Services (MDDS)

Supported by the MA Sexual Violence Prevention Plan

made possible by Centers for Disease Control and Prevention (CDC)

Cooperative Agreement 05037CONT07, CFDA 93.13:

Building Evaluation Capacity for Rape Prevention and Education Funded Programs.’

Resource guide contents do not necessarily represent the official views of the CDC.

Acknowledgements

The Healthy Relationships, Sexuality and Disability Resource Guide 2011 was created by a partnership between the Massachusetts Department of Public Health (MDPH) and the Massachusetts Department of Developmental Services (MDDS), in fulfillment of the MA Sexual Violence Prevention Plan made possible by CDC Cooperative Agreement 05037CONT07, CFDA 93.13: Building Evaluation Capacity for Rape Prevention and Education Funded Programs. Its contents are solely the responsibility of the authors and do not necessarily represent the official views of CDC.

The resource guide was developed following a needs and resources assessment survey conducted by Marci Diamond, Jeanne Ward, and Pialee Roy of the MDPH Bureau of Community Health and Prevention, and Janice O’Keefe and staff of the MDDS Office of Quality Management. Substantial input to the survey was provided by Susan Love of the Disabled Persons Protection Commission and members of the DPH Children with Special Health Care Needs Young Adult Advisory Council.

Lenore Tsikitas, Health Access and Promotion Coordinator of the MDPH Family Planning Program oversaw production of this resource guide with the input and expertise of Patricia Carney, Training Coordinator of the MDDS Office of Learning and Development, and the contribution of several MDPH interns: Adeolu Odewale, Hannah Zangwill and Jayne Greenberg.

Introduction

In 2009, the Massachusetts Department of Public Health (MDPH) and Department of Developmental Services (MDDS), with the support of the Disabled Persons Protection Commission (DPPC) and other stakeholders, worked together to survey youth in Massachusetts living with disabilities—as well as the parents, providers and program partners who support them—about their experiences with and opinions about sexuality education and abuse prevention. Health education on these topics helps people develop an understanding of and sense of control over their own bodies, behaviors, emotions, and relationships, which is essential to achieving sexual health and wellbeing. This needs assessment survey, along with a follow up survey conducted by DDS with its vendor network, was designed to understand and address sexuality education gaps experienced by people living with disabilities was a key part of the 2009-2016 Massachusetts Sexual Violence Prevention Plan to reduce sexual violence in Massachusetts. Many of the diverse resources listed here in the Healthy Relationships, Sexuality and Disability Resource Guide (2011) were first suggested by Massachusetts residents who took part in this unique survey to identify and share locally recommended sexual health and wellness resources that support people living with disabilities. Additional resources were suggested by MDPH and MDDS program partners and staff.

Learning how to access medically accurate, developmentally appropriate health information and resources about sexual health, development and safety is an important developmental task for all youth, and a skill that is needed throughout adulthood. Yet according to the 2009 needs assessment survey, many youth living with disabilities in Massachusetts have not received health education and related supports that are adequate or specific to their needs. Many youth reported lacking support for developing healthy, supportive, respectful and equitable relationships, as well as recognizing and reporting abuse. Parents and providers echoed the need for additional resources to help them support people with disabilities have practical access to these human rights. This preventative resource guide was created to share a variety of resources to assist people living with disabilities and those who care about them in accessing the information and guidance they may need to support a broad spectrum of developmentally appropriate tasks related to the reduction of health risks and promotion of healthy relationships and sexuality.

Youth and adults with a wide range of intellectual, developmental and physical abilities and disabilities can benefit from the various types resources listed here which include books, CD/DVDs, curricula and trainings, websites, helplines and support groups. Brief descriptions of each of the resources and how to access them are also included so that the reader can review them and decide which meet their needs best. International Standard Book Numbers (ISBN numbers) have been provided for resources that can be found in multiple places, such as libraries or online bookstores. The cost of these resources vary; some are affordable for individuals and families and others, like curricula, may be more easily purchased by schools and/or other larger systems of care.

The Healthy Relationships, Sexuality and Disability Resource Guide 2011 is intended for DPH/DDS program staff and the public that may be periodically updated. The presence of resources and information in this guide does not constitute an endorsement by MDPH or MDDS of any particular organization or philosophy. (For example, please note that some of the older resources may contain the now-outdated term “mental retardation,” which is no longer considered an appropriate way to describe people living with intellectual and developmental disabilities in Massachusetts. Only those resources that contain a lot of valuable information despite the use of this term have been included for your reference). Not every resource here is necessary or appropriate for every person or situation, and some resources may be appropriate for multiple types of people or situations. You can decide what resources best fit your own needs, situation, personal and familial values.

If you would like to talk to someone about which of these resources may best meet your needs, please contact the Children With Special Health Care Needs Support Line at 1-(800) 882-1435 or (617) 624-5992 (TTY). This toll free support line has bilingual capacity in Spanish, and is staffed by social workers with years of experience assisting families of children and youth with special health care needs. They can help identify additional resources for residents who wish to begin or need help to continue conversations about sexual health and development across the lifespan. They can also provide information about other helpful community resources, public benefits, and state programs. If you are aware of additional resources that may benefit people living with disabilities in Massachusetts, please contact Lenore Tsikitas at 617-624-6060 or lenore.tsikitas@.

Thank you for your efforts to continue to share these important resources. Improving access to medically and factually accurate resources which promote healthy, respectful and equitable attitudes and beliefs about sexuality will not only help to reduce the incidence of sexual violence in Massachusetts, but will also to enable people living with disabilities to enjoy healthier and more fulfilling lives.

Healthy Relationships, Sexuality and Disability

Resource Guide 2011

Table of Contents

Topic: Page number:

Puberty and Human Development 4

Puberty and Human Development: Autism Spectrum Disorders (ASD) 8

General Sexuality Education 10

Social Skills and Relationship Development 16

Sexual Orientation and Identity 17

Sexual Health and Human Rights 19

Sexual Abuse Prevention 22

Puberty and Human Development

Contact Information & Availability

Resource Type & Overview

Intended Audience

Talking Together... About Growing Up: A Workbook for Parents of Children with Learning Disabilities

Lorna Scott, Lesley Kerr-Edwards, and Nic Watts

Published by: Family Planning Association (2010)

ISBN: 190550618X

This workbook offers support for parents and caregivers of children with learning disabilities who are approaching or are around the age of puberty. The easy-to-follow style and clear, picture based stories are suitable for young people who may not be able to read. Schools can adapt and use it as part of their sex and relationships education program and to develop their partnership with parents to support this work at home.

  • Parents

  • Children/Youth with disabilities

Girls are Girls and Boys are Boys, So What’s the Difference?

Sol Gordon

Published by: Prometheus Books (1991)

ISBN: 0879756861

This book explains the facts of human reproduction and the physical differences between boys and girls. It contains good illustrations of human development appropriate for all youth.

  • Parents

  • Children/Youth

Teaching Children with Down Syndrome about Their Bodies, Boundaries, and Sexuality: a Guide for Parents and Professionals

Terri Couwenhoven

Published by:

Woodbine House (2007)

ISBN: 189062733X

This training guide covers relevant issues and concerns for children of all ages, as well as later issues that affect teenagers and young adults. Relevant and helpful for any youth or young adult with developmental or intellectual disabilities (DD/ID).

  • Parents of children with DD/ID

  • Educators and direct support professionals

  • Health care professionals

Where Did I Come From?”

Peter Mayle

Published by:

Lyle Stuart (2000)

ISBN: 0818402539

This book covers the basic facts from love-making, orgasm, conception and growth inside the womb, through to the actual birth day. Names all the names and shows all the important parts of the body with colorful illustrations.

  • Children/Youth

  • Parents

Janet’s Got Her Period: Training in Menstrual Self-Care for Girls and Young Women with Severe Developmental Disabilities
Judi Gray, Jitka Jilich
Published by:
James Stanfield Co. 1990

Available at:

/sex-ed-janets-got-her-period.html

This training program is geared to young women with cognitive impairment. It includes a video which is done in story form and features a girl with Down Syndrome and her family. There is an accompanying story/picture book of guidelines for “managing menstruation” and a set of pictographs. Actors have Australian accents.

  • Health care professionals

  • Educators and direct support professionals

I Am a Beautiful Person: Sexuality

and Me

Produced by:

The PACER Center, a National Parent Advocacy Coalition for Educational Rights based in Minneapolis.

Available at: /videos/beautiful.html

This video provides discussion by parents and young people with disabilities about the important, but challenging topic of sexuality.

13 minutes. Closed-captioned.

  • Children/Youth with disabilities

Sexuality of Children and Adolescents With Developmental Disabilities

Pediatrics. Official Journal of the American Academy of Pediatrics (2006)

Nancy A. Murphy, Ellen Roy Elias, for the Council on Children With Disabilities.

Available at:

http://pediatrics.aap/cgi/reprint/118 /1/398

This report discusses issues of puberty, contraception, psychosexual development, sexual abuse, and sexuality education specific to children and youths with disabilities and their families.

  • Health care professionals

  • Parents of youth with disabilities

  • Educators

Puberty and Human Development: Autism Spectrum Disorders (ASD)

Contact Information & Availability

Resource Type & Overview

Intended Audience

Asperger’s and Girls

Tony Attwood

Published by:

Future Horizons (2006)

ISBN: 193256540X

This book on puberty and relationships was jointly written by girls and women with Asperger’s to empower individuals living with Asperger’s to successfully transition from girlhood to womanhood.

  • Adolescent girls with Asperger’s

  • Parents of adolescent girls with Asperger’s

Autism-Asperger’s & Sexuality: Puberty and Beyond

Jerry & Mary Newport

Published by:

Future Horizons (2002)

ISBN: 1885477880

This book provides first-hand knowledge and practical advice to help guide young autistic adults/adults with Autism Spectrum Disorders (ASD) and their caregivers through the often difficult but important topic of puberty.

  • Adolescents with ASD

  • Parents of adolescents with ASD

Girls Growing Up on the Autism Spectrum: What Parents and Professionals Should Know About the Pre-Teen and Teenage Years

Shana Nichols, with Gina Marie Moravcik & Samara Pulver Tetenbaum

Published by:

Jessica Kingsley Pub. (2008)

ISBN: 1843108550

This book covers the many concerns commonly faced by girls with Autism Spectrum Disorders and their parents, from periods and puberty to worries over friendships and ‘fitting in.’ The authors give candid and realistic advice on a wide range of important teenage topics.

  • Parents of girls with ASD

  • Health care professionals

Freaks, Geeks & Asperger Syndrome:

A User Guide to Adolescence

Luke Jackson

Published by:

Jessica Kingsley Pub (2002)

ISBN: 1843100983

Drawing from his own experiences and gaining information from his teenage brother and sisters, Luke at 13 years old wrote this enlightening, honest and witty book in an attempt to address difficult topics such as bullying, friendships, when and how to tell others about ASD, school problems, dating, relationships and morality.

  • Adolescents with ASD

Taking Care of Myself: A Hygiene, Puberty and Personal Curriculum for Young People with Autism

Mary Wrobel

Published by: Future Horizons (2003)

ISBN 1885477945

This curriculum contains stories with information on health, hygiene, modesty, growth and development, menstruation, touching and personal safety and masturbation.

  • Educators and direct support professionals

Living with Autism: Puberty and Children on the Autism Spectrum

Autism Society

4340 East-West Hwy, Suite 350
Bethesda, Maryland 20814
(301) 657-0881 or 1(800)-3-AUTISM (1-800-328-8476)

Available at: http://www.autism-society .org/about-us/publications/ resource-materials.html

A parent’s guide to navigating and discussing puberty with an autistic daughter or son. You must register to use the website to access this resource.

  • Parents of youth with ASD

  • Educators and direct support professionals

General Sexuality Education

Contact Information & Availability

Resource Type & Overview

Intended Audience

The Ultimate Guide to Sex and Disability: for All of Us Who Live with Disabilities, Chronic Pain and Illness

Miriam Kaufman, Cory Silverberg and Fran Odette.

Published by:

Cleis Press (2007)

ISBN: 1573443042

This book addresses a wide range of disabilities from chronic fatigue, back pain, and asthma to spinal cord injury, hearing and visual impairment, multiple sclerosis, and more. Provides readers with encouragement, support, and all the information they need to create a sex life that works for them. The authors, a medical doctor, a sex educator, and a disability activist, cover all aspects of sex and disability, including building a positive sexual self-image; positions to minimize stress and maximize pleasure; dealing with fatigue or pain during sex; finding partners and talking with partners about sex and disability; adapting sex toys; and more.

  • Adults with general physical disabilities

Life Cycle - How We Grow and Change: A Human Development and Sexuality Education Curriculum

Sherrie M. Vavrichek and R. Kay Tolle

Published by:

Life Cycle Education Consultants, LLC. (2008)

Available for order from:

/online-store/

This curriculum is designed to teach youth and adults with developmental disabilities about psycho-social and sexual development throughout the human life cycle. Self-esteem, privacy awareness, respectful relationships, appropriate/inappropriate touch, abuse prevention, independence, physical 

growth and change are some of the key concepts emphasized. Life Cycle includes an instructor's guide, pre and post test, quizzes, lesson plans, and over 100 student lessons and activities as well as a CD with full-color illustrations to enhance the teaching and learning process.

  • Adolescents and adults with DD/ID

  • Sexuality Educators

  • Direct Support Professionals

CIRCLES®: Intimacy & Relationships Education

Contact:

Tonia Show or Trudy Grable

(408) 727-5775

trudy@

Parents Heling Parents (PHP) San Jose, CA

Published by:

James Stanfield Co.

Available at:

/services/circles

The CIRCLES curriculum is a 6 weeklong session that teaches social distance and levels of intimacy through the use of six color-coded concentric circles. It assists students to discriminate different degrees of intimacy and to adapt their behaviors accordingly. It also teaches students how relationships can be formed and maintained according to the social norms of our day.

  • Youth and adults with DD/ID

  • Sexuality Educators

  • Social service agencies that work with adults with

Changes In You: An Introduction to Sexual Education Through an Understanding of Puberty

Published by:

James Stanfield Co.

Available for order from:

/sex-ed-changes-in-you.html

This curriculum provides a gentle and sensitive approach that helps girls and boys feel confident and comfortable with the physical, social and emotional changes during teen years. It includes a trainer’s guide, laminated picture cards (11x17 inch), and student texts (5 each, boy/girl).

  • Educators

Understanding & Expressing Sexuality: Responsible Choices for Individuals with Developmental Disabilities

Rosalyn Kramer Monat-Haller

Published by:

Paul H. Brookes (1992)

ISBN: 1557660735

This book discusses topics and issues including: human anatomy and physiology, maturation and body changes, inappropriate sexual behavior, abuse, and offenders, birth control options, sexually transmitted diseases, aspects of psychosocial-sexual behavior and psychosocial development, and marriage and parenthood.

  • Adults with DD/ID

  • Educators and direct support professionals

  • Disability Advocates

Produced by AIDS Action

Available at:

This statewide helpline and website for teens and young adults provides youth-friendly low-literacy information about sexual health topics from anatomy to relationships and communication, sex, birth control, pregnancy options, HIV/STD prevention, sexual identity issues and more. It also provides information about and referrals to sexual health and youth development programs in MA.

  • Youth

  • Parents

  • Educators and direct support professionals

  • Health care professionals

Sexuality Education Curriculum for Adults with Developmental Disabilities

Planned Parenthood of Northern New England (2009)

Written in collaboration with Green Mountain Self Advocacy

Available for order from:

/ppnne/ development-disabilites-sexuality-31307.htm

A three part curriculum that includes:

  • Manual with tips on how to establish a sexuality education group and be an effective sex educator

  • Curriculum with a peer education model and 20 lessons with scripts and handouts

  • Pre/post test instructions for students.

  • Adults with developmental disabilities/ intellectual disabilities

  • Sexuality educators

  • Direct support professionals

Teaching Sexuality to Developmentally Disabled Youths: What Do I Say? How Do I Say It?

Lisa Maurer

Published by:

Resource Center for Adolescent Pregnancy Prevention

Available at: /recapp/index.cfm?fuseaction= pages.EducatorSkillsDetail&PageID=96

This online article contains specific suggestions, tips, and ideas for effectively teaching youth with developmental disabilities about sexuality topics.

  • Educators and direct support professionals

F.L.A.S.H. Lesson Plans: Comprehensive sexuality education curriculum

Contact:

Seattle and King County
516 Third Avenue
Seattle, WA 98104

206-296-0100 or 800-325-6165
TTY Relay: 711

Available for download at: http://www.kingcounty.gov/healthservices/health/ personal/famplan/educators/FLASH.aspx

The F.L.A.S.H. curriculum is a sexual education course for schools created by the Seattle, Washington, Office of Public Health. The curriculum can be downloaded at no charge from the website.

F.L.A.S.H. consists of lesson plans and transparencies for grades 4 through 12 as well as lesson plans and curriculum designed for special education students and young adults.

  • Children/Youth

  • Parents

  • Educators

All of Us Talking Together: Sex Education for People with Developmental Disabilities (1999)

Available at:

This DVD contains a detailed sex education segment includes reproductive anatomy, pregnancy, contraception, and disease prevention. Social skills, desire for friendship, companionship, romance and relationships are considered.

  • Parents

  • Children/Youth with disabilities

  • Educators and direct support professionals

Teaching Sexual Health Resource Lists

Society of Obstetricians and Gynecologists of Canada (SOGC) & Canadian Foundation for Women’s health

Available at:

http://sexualityandu.ca/en/

This society provides resource lists and guidelines for teachers providing sexual education to youth with intellectual disabilities and physical disabilities.

  • Educators and direct support professionals

Human Sexuality Education for Students with Special Needs

MarshMedia and the Puberty Education for Students with Special Needs programs (2007)

Liz Sweeney

Available at:

/resources2/files/ Special-Needs-Puberty-Education.ppt#260,5, Adapting strategies and materials

This Power Point presentation/white paper discusses cultural and developmental considerations related to teaching youth with special needs about sexual health.

  • Educators

Introduction to Sexuality Education for Individuals Who Are Deaf-Blind and Significantly Developmentally Delayed

The National Information Clearinghouse on Children Who Are Deaf-Blind

Available at:

/documents/products/sex-ed.pdf

This report discusses the importance of providing the deaf-blind population with information and skills on issues such as modesty, appropriate touch and personal boundaries, menstruation, masturbation, sexual health care, and sexual abuse.

  • Parents

  • Health care professionals

  • Adults who are deaf/blind or have significant DD

  • Educators and direct support professionals

Sex Education for Physically, Emotionally, and Mentally Challenged Youths

Advocates for Youth

Available at:

/storage/advfy/ documents/challengedyouth.pdf

This resource guide provides an overview of common myths and facts about the sexuality of people living with disabilities, as well as guidelines for parents of physically or mentally challenged children and youths. Also includes a select, annotated bibliography of sex education materials and resources. PDF also available for download.

  • Parents

  • Educators

  • Health care professionals

Ten Tips for Talking About Sexuality with Your Child who has Developmental Disabilities

Advocates for Youth

Available at:

/parents/172? task=view

This online article provides quick tips to help a child with developmental disabilities understand topics such as puberty, sex, love, self-esteem.

  • Parents

Teach-A-Bodies
An Effective Resource for Sex Education, Investigation, Therapy and Courtroom Testimony
Published by: June Harnest
(1983)

Available at:

This website offers anatomically correct plush dolls of varying ages, ethnicities and both sexes with an accompanying booklet.

  • Health care professionals

  • Educators and direct support professionals

SIECUS Report: Sexuality Education for People with Disabilities

Published by:

Sexuality Information and Education Council of the United States, Inc Vol. 29, No.3 Feb./Mar. 2001

Available at:

/search-document-detail.php?ID=663

This annotated bibliography on sexuality and disability includes information on books, videos, curricula, and organizations with information related to this subject.

  • Educators and direct support professionals

Social Skills and Relationship Development

Contact Information & Availability

Resource Type & Overview

Intended Audience

The Facts of Life…and More: Sexuality and Intimacy for People with Intellectual Disabilities

Leslie Walker

Published by:

Paul H Brookes (2007)

ISBN: 1557667144

This book contains candid interviews and personal anecdotes that show how real-life couples with intellectual disabilities handle the joys and challenges of their relationships—courtship, sex, parenthood, disagreements, finances, and more. It includes examples of effective sexuality education techniques and vivid case studies illustrating key points.

  • People with DD/ID

  • Educators and direct support professionals

  • Health care professionals

Social Skills Training for Children and Adolescents with Asperger Syndrome and Social-Communications Problems

Jed Baker

Published by:

Autism Asperger Publishing Co. (2003)

This training guide highlights 70 of the skills that most commonly cause difficulty for individuals with autism spectrum disorders and social-communication problems. Each skill is presented with a reproducible skill handout, as well as activity sheets listing ways teachers and parents can demonstrate, practice and reinforce the skill in the classroom and at home.

  • Parents of children and adolescents with ASD

  • Educators and direct support professionals

S.T.A.R.S.: a Social Skills Training Guide for Teaching Assertiveness, Relationship Skills and Sexual Awareness

Susan Heighway

Published by:

Future Horizons (2007)

ISBN: 1932565256

This training guide was designed to teach youths and adults with developmental disabilities about: understanding relationships, building social skills, and sexual awareness and assertiveness—with the goals of promoting positive sexuality and preventing sexual abuse.

  • Parents

  • Educators and direct support professionals

Sexuality: Your Sons and Daughters with Intellectual Disabilities

Karin Melberg Schwier and Dave Hingsburger

Published by: Paul H. Brookes Pub. (2000)

ISBN: 1557664285

Available at:

A reassuring book for parents that describes how to interact with children in a way that increases self-esteem, encourages appropriate behavior, empowers them to recognize and respond to abuse, and enables them to develop life long healthy relationships.

  • Parents of children with DD/ID

  • Educators and direct support professionals

Online Mentoring Program

Partners on Line (POL)

Meryl Libbey
Partners Online Program National Coordinator
(617) 556-4075 x19
mlibbey@

Online mentoring sponsored by Partners for Youths with Disabilities.

  • Children/Youth with disabilities

Sexual Orientation and Identity

Contact Information & Availability

Resource Type & Overview

Intended Audience

Gay, Lesbian, Bisexual, and Transgender People with Developmental Disabilities and Mental Retardation: Stories of the Rainbow Support Group

John D. Allen

Published by: Harrington Park Press (2003)

ISBN: 1560233958

This book describes the history behind the Rainbow Support Group and how it has been shattering myths and stereotypes surrounding people with developmental disabilities and mental retardation. Addresses the fears and concerns of its members and the positive aspects of group membership.

  • People with DD/ID

  • Educators and direct support professionals

Sexual Orientation and Identity

Contact Information & Availability

Resource Type & Overview

Intended Audience

Rainbow Support Group of Massachusetts

Statewide Coordinators:

Pauline Bosma, Project Consultant

Rainbow Support Group of Massachusetts

500 Harrison Avenue, Boston, MA 02118

rainbows_58@

(866) 426-2253

Ed Bielecki, Coordinator

Massachusetts Advocates Standing Strong

500 Harrison Avenue

Boston, MA 02118

(866) 426-2253

mass1998@

Pat Carney, Trainer

Department of Developmental Services, Central West Region

Office of Learning and Development

171 State Avenue

Palmer, MA 01069

(413) 284-5083

patricia.carney@

Rainbow Support Groups are regional support groups for LGBTQ adults with developmental disabilities in MA. You can call the statewide coordinators listed in the contact information section or the numbers listed below for information and support, as well as to learn more about the current schedule and locations of the Rainbow Support Groups currently held in:

Greater Boston

(617) 876-4210, ext. 158

Cambridge Family & Children’s Services

60 Gore Street

Cambridge, MA

Metro Boston

(781) 762-8539

Riverside Community Care

450 Washington St.,

Suite 201

Dedham, MA 02026

Central Massachusetts

(508)-755-2340

Seven Hills Foundation

81 Hope Avenue

Worcester, MA 01603

Western Massachusetts

(413) 536-2410

Western MA Training Consortium

187 High Street Suite 202

Holyoke, MA 01040

  • LGBTQ advocates and educators

  • LGBTQ Adults with disabilities


Sexual Health and Human Rights

Contact Information & Availability

Resource Type & Overview

Intended Audience

Choices: A Guide to Sex Counseling with Physically Disabled Adults

Maureen E. Neistadt and Maureen Freda

Published by:

Krieger Pub. (1987)

ISBN: 0898749034

This guide contains guidelines for sexuality counseling and examines issues of intimacy and communication, as well as the sexual response cycle. It discusses functional and sexual difficulties caused by disabilities and the impact of disability on social issues such as privacy, dating, marriage, and childbearing. Reading and resource lists are included.

  • Health care

professionals

  • Counselors and clinicians

Sexuality, Learning Disabilities, and Doings What’s Right

Gavin Fairbairn, Denis Rowley, and Maggie Bowen

Published by:

David Fulton Pub. (1995)

ISBN: 1853462926

This book addresses sexuality and people with learning disabilities. It explores the rights that individuals have to be informed about sexuality issues, to form relationships, and to express themselves sexually.

  • Parents

  • Educators and direct support professionals

  • Disability advocates

Sticks and Stones: Disabled People's Stories of Abuse, Defiance and Resilience

Marsha Saxton

Published by:

World Institute on Disability (2009)

Available at :

/online-store/

This book contains a collection of over 50 stories about facing abuse and violence written by a diverse group of people with disabilities, family members, service providers, and other allies covering a wide range of mistreatment and recovery experiences. It helps educators and trainers build creative and meaningful activities around the stories.

  • Health care professionals

  • Educators and direct support professionals

  • Disability advocates

Those are MY PRIVATE PARTS

Diane Hansen

Published by:

Empowerment productions (2004)

ISBN: 0976198800

Available at:

/ online-store/

This book helps children open healthy communication about what is okay and what is not okay when it comes to touching private parts of the body. It uses child-friendly rhyming and colorful illustrations by a four-year-old to incorporate messages about sexual abuse prevention. Statistics and information on childhood sexual abuse are included for parents and educators.

  • Children with disabilities

  • Parents

  • Educators and direct support professionals

Impact: Feature Issue on Sexuality and People with Intellectual, developmental, and Other Disabilities

Institute on Community Integration & Research and Training Center on Community Living

Volume 23: Number 2 Spring/Summer 2010

Contact:

University of Minnesota, 109 Pattee Hall, 150 Pillsbury Dr. SE, Minneapolis, MN 55455

(612) 624-4512

icipub@umn.edu

This publication is comprised of several articles written by people with disabilities and those who have supported them on their journey to learn about and experience sexuality, dating, intimacy, relationships, marriage and parenting. It was compiled to provide information and inspiration to further support the right and opportunity for people with disabilities to understand and express this essential dimension of human life, throughout the lifespan. Several additional resources, many written by self advocates, are included.

  • Adolescents and adults with disabilities

  • Parents of adolescents and adults with disabilities

  • Educators and direct support professionals

  • Disability advocates

Me HIV+…What Do? A Guide for Deaf People Living with HIV Disease

AIDS Services of Austin

Available at:

http://cira.med.yale.edu/globalsurvey/warthling_lopez.pdf

A guide to taking care of your health after being infected with HIV that includes information on how to deal with your emotions and medical follow-up needs after being diagnosed. Several sections are devoted to insurance and social support services, and one chapter specifically addressed women’s health needs.

  • Deaf individuals living with HIV

A Training Manual for Direct Care Staff

Mark Steege and Shannon L. Peck.

Contact:

5410 Fredericksburg Road,

Suite 111
San Antonio, Texas 78229

(877) 560-1739

orders@

Published by:

The Steege Corporations

A manual designed to help direct care staff overcome their discomfort with the sexual behavior of individuals with intellectual disabilities. The manual is the outgrowth of workshops presented by the authors and is designed to be used for individual rather than group work so that each staff member can work through their own discomfort using the exercises in the manual.

  • Health care professionals

  • Direct Support Professionals

The GYN Exam Handbook & Exam Video
Maria Oliva Taylor
Published by:
James Stanfield Co. Inc. Santa Barbara, CA. 1991.

Available for order from:

/sex-ed-gyn-exam.html

This handbook and video was designed for females with special needs. Illustrates the essentials of gynecological/pelvic exam. Includes video and training manual for pelvic exam, Pap smear, and breast exam.

  • Health care professionals

Sexual Abuse Prevention

Contact Information & Availability

Resource Type & Overview

Intended Audience

Awareness & Action: Educating Persons with Disabilities on Recognizing, Reporting and Responding to Abuse Massachusetts Trainer Guide, Curriculum, Video and Participant Workbook

Contact:

Building Partnerships Initiative (BPI) c/o Disabled Persons Protection Commission (DPPC)

300 Granite Street, Suite 404

Braintree, MA 02184

(617) 727-6465

(888) 822-0350 TTY

www.mass.gov/dppc

The Awareness and Action: Educating Persons with Disabilities on Recognizing, Reporting and Responding to Abuse curriculum and supporting materials (PowerPoint slide presentation, video, participant workbook and trainer guide) were developed by persons with disabilities in partnership with the Building Partnerships for the Protection of Persons with Disabilities Initiative (BPI) to educate persons with disabilities and others about abuse committed against persons with disabilities.

The three-hour training, taught by persons with disabilities and others, and accompany video and participant workbook, introduces the abuse of persons with disabilities and closely examines how to recognize, report and respond to five different types of abuse (physical, sexual, neglect, verbal and financial) through five powerful vignettes, a slide presentation, group activities, skits and worksheets. At the end of the three-hour training, participants take home reporting and learning materials including a backpack, DVD of Abuse Stories, participant workbook, state and local resources and more.

  • Persons with Disabilities

  • Support Staff

  • Family members

  • Social service agencies that work people with disabilities

  • Health care professionals

  • Educators and direct support professionals

Just Say Know! Understanding and Reducing the Risk of Sexual Victimization of People with Developmental Disabilities

Dave Hingsburger

Published by:

Diverse City Press (1995)

ISBN: 1896230008

This book offers inspiration and practical guidance for families and clinicians on the subject of sexual abuse and the vulnerability of people with developmental disabilities.

  • Parents

  • Health care professionals

  • Educators and direct support professionals

My Body...My Choice

Shirley Paceley

Illustrated by Annette Russo Penhallegon (2001)

Available at: / online-store/

This fully illustrated mini-book covers the basics of body safety, empowering people with disabilities across the nation to resist and report sexual abuse.

  • Youth with disabilities

  • Parents

  • Educators

My Body...My Choice Set

Shirley Paceley

Illustrated by Annette Russo Penhallegon (2001)

Available at: / online-store/

This set includes the fully illustrated mini-book written for youths and adults with developmental disabilities and 15 laminated cards which can be used in group settings to encourage discussions and role play about sexual abuse prevention. The colorful cards are leader friendly, featuring the words from the book on the back of each picture.

  • Adults and youth with disabilities

  • Parents

  • Educators and direct support professionals

Safe Beginnings: Protecting Our Children from Sexual Abuse

Orieda Horn Anderson and Shirley Paceley

Published by: Blue Tower Training Center (2003)

ISBN: 1931568200

Available at:

/online-store/

This guidebook contains:

  • Strategies for teaching preschool children about self-respect, self-esteem, sexuality, and safety

  • Skills for empowering children to resist and report sexual abuse

  • How to create safe environments in nurseries, preschools, day care centers, and schools

  • Tips for raising boys and girls

  • What to do if abuse occurs

  • Resources and ideas for social change

  • Parents of pre-school children

  • Educators and childcare workers

WE CAN Stop Abuse: A Sexual Abuse Prevention Curriculum for Persons with Developmental Disabilities

Sandy Laesch and Shirley Paceley

Published by:

Macon Resources, Inc (2004)

Available for order from: /online-store/

The WE CAN Stop Abuse curriculum has been proven effective for teaching abuse prevention skills to persons with developmental disabilities. The curriculum includes:

  • Eight ready-to-use interactive sessions with several activities

  • Introductory information for sexual assault center employees

  • Goals and objectives for individual participants

  • Evaluation instruments to measure individual skills

  • Human sexuality resource list

  • Overview of the WE CAN Stop Abuse Project in Illinois.

  • Sexuality educators

  • Direct support professionals

  • Adults with DD/ID

Respect: A Girl's Guide to Getting Respect & Dealing When Your Line Is Crossed

Courtney Macavinta and Andrea Vander Pluym

Published by:

Free Spirit Publishing (2005) ISBN: 1575421771

This girl’s guide covers topics girls deal with daily, including body image, family, friends, the media, school, relationships, and rumors. Confronts tough issues like sexual harassment, date rape, sex, drugs, and alcohol. Thorough guide for parents and girls.

  • Girls

  • Parents

  • Educators and direct service professionals

Teach Me

Lyrics by Shirley Paceley, Music by Jill Dixson

Available at: / online-store/

A powerful song about sexual abuse of a person with developmental disabilities. Useful in counseling, employee development, prevention education, parent education, and community awareness.

  • Parents

  • Educators and direct support professionals

  • Disability advocates

  • Counselors and clinicians

No! How!!

Dave Hingsburger and Diverse City Press

Available at: / display.htm

This DVD includes all of the important elements of sexual abuse prevention as well as a problem-solving process for persons with developmental disabilities. The actors and actresses are people with developmental disabilities teaching others about sexual abuse—what it is and how to prevent it.

  • Adults with disabilities

  • Educators and direct support professionals

Communication is Protection! Brochure Series

Massachusetts Department of Public Health (MDPH)

Available at:

MDPH

250 Washington St. 4th fl

Boston, MA 02108

(800) 882-1435 or (617) 624-6060

(617) 624-5992 (TTY)HotH HotlineHelp

The Massachusetts Department of Public Health has developed two brochures for parents and caregivers that communicate the importance about talking about sex and sexuality with young people with disabilities. Includes referral to a statewide support line for children with special health care needs.

  • Communication is Protection! Prevent Sexual Exploitation: Tri-fold brochure (double-sided). Offers communication tips to empower youths and prevent abuse.

  • Communication is Protection! Sexuality & Youths with disabilities: Tri-fold brochure (double-sided). Offers communication tips to help teens build healthy relationships and promote socialization.

  • Parents of youth with disabilities

Kid & Teen Safe

Abuse Prevention Program for Youth with Disabilities

Published by: National Resource Center on Domestic Violence (2002)

Available at:

/Assoc_Files_VAWnet/NRC_KTSafe-full.pdf

A school-based program outline and curricula model, this comprehensive online booklet focuses on prevention and intervention of abuse of disabled students. Designed to aid in implementing school programs in abuse prevention.

  • Educators

Traumatic Brain Injury and Domestic Violence: Understanding the Intersections

Vawnet Special Collections on

Domestic Violence Prevention

Published: (2010)

Available at:

/special-collections/ DVBrainInjury.php

Special collection of best practices in domestic violence prevention and education for those with traumatic brain injuries. Includes screening tools and other resources.

  • Educators and direct support professionals

Violence in the Lives of the Deaf or Hard of Hearing

Vawnet Special Collections on

Domestic Violence Prevention

Published: (2009)

Available at:

/special-collections/ Deaf.php

Special collection of best practices in domestic violence prevention and education for the deaf and hard of hearing. Includes training tools and other resources.

  • Educators and direct support professionals

SafePlace: Disability Services Online

Available at:

/Page.aspx?pid=317

This website offers educational presentations and training materials aimed at reducing the risk of sexual and domestic abuse of disabled people. Resources include tips on preventing, identifying and responding to abuse.

  • Health care professionals

  • Educators and direct support professionals

Thank you for your commitment to sharing these valuable resources. Improving access to medically and factually accurate resources which promote healthy, respectful and equitable attitudes and beliefs about sexuality will not only help to reduce the incidence of sexual violence in Massachusetts, but will also to enable people living with disabilities to enjoy healthier and more fulfilling lives.

If you would like to talk to someone about which of these resources may best meet your needs, please contact the:

Children With Special Health Care Needs Support Line at 1-(800) 882-1435 or (617) 624-5992 (TTY). If you are aware of additional resources that may benefit people living with disabilities in Massachusetts, please contact Lenore Tsikitas at 617-624-6060 or lenore.tsikitas@.



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